Coordinating Long Term Survivors:
I was diagnosed in 1987 living half my life with HIV. I am interested in connecting with people who are also Long Term Survivors. I have searched the site and have found quite a few. We are so few and far between it has been hard to find others who have been through the journey we have experienced. Having lost so many friends in the 80 's and 90's plus being diagnosed myself has made me feel survivors guilt and PTSD. Looking for others who have experienced some of the same and like to set… read more
1985 & diagnosed "full blown" 1990 although they don't use that term anymore! Thank goodness! I read earlier on this site a comment about "long term" & the difficulties we face. We do have different… read more
Where Do You See Your Life, 10 Years From Now?
Because it all depends on .....tomorrow's VOTE.
It's all good 🌈❤️🌈👋🤶🧑🎄🎁
Which HIV Symptom Surprised You The Most?
Weight/ stomach excessive hard fat. Trying Ozempic and lost 50 pounds but the stomach just won't give it up.
Original question was my surprise is the Guilt, mentally unstable. Going on 26 years.
What Are Your Top Tips For Dealing With HIV In The Heat?
I'm definitely a homebody! I hate having to get dressed to go anywhere! I hate having to get dressed period!
Are You Comfortable
Telling others people you are living with hiv ? Or do you keep it too your self and of course your partner if have it 🤔
What Is One Of Your Favorite Pastimes, Eg, A Hobby That You Enjoy Doing... To Get Your Mind Off Something That's Bothering You?
People use lots of vices like meditation, eating , drinking, etc.
What is something that you turn to get your mind off things?
Oh yes he did @A myHIVteam Member. And the answers??? (inquiring minds want to know).
What Really Bothers You Most About Being HIV Positive?
Some of us have been very fortunate not having any side effects and others have passed on from complications related to HIV.
What bothers you most about it?
I follow you Sam. One year poz now and I feel pretty used to it. Besides I can't change it so good thing I am accustomed
Have You Thought About Writing Your Will?
Sometimes long-term HIV leads to certain surgeries. Whether, you're going through a surgery, in hospice care or just for your own peace of mind.....Have you created your last will and testament?
Glad you are feeling better
What Bothers You Most About This Cold Weather?
Cold weather can affect us in many ways. Our bones, our sugar levels, our energy, depression and so forth. All take a hit.
Does the cold weather affect you?
@A myHIVteam Member. It's the dryness. Water moderates the temperature going up or going down. Without water the temperature can quickly change and rise or fall, dramatically.
What Are You Doing In 2024?
Any plans for the upcoming year?
Believe