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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Have Anyone Living With HIV/AIDS Ever Experience Painful Mouth Syndrome?

A myHIVteam Member asked a question 💭
Indianapolis, IN

With Painful Mouth Syndrome it only affects my tongue. My tongue feels like it is on fire 24/7. My tongue is burning. The discomfort feel as though I have blisters on my tongue. My tongue stings.

January 10
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A myHIVteam Member

Thank you so very much!!!

January 11
A myHIVteam Member

There are many potential causes (for example infection, nerve issue, maybe even a vitamin deficiency or side effect from a medicine you are taking). So I would take some further healthcare advice to find out the underlying cause. It could be something easily sorted.

Hope you feel better very soon. Let us know how you get on.

January 11
A myHIVteam Member

My HIV doctor never heard of it. And doesn’t have a clue how to treat it.

January 10
A myHIVteam Member

My doctors and dentist don’t know how to treat it.

January 10
A myHIVteam Member

I've never heard of this , what did the doctor say?🤔

January 10

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