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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Time To Refresh

A myHIVteam Member asked a question 💭
New Brunswick, NJ

Do you think it’s time for the CDC and The national institute of health to refresh there terminology on HIV. It’s 2024 not 1983 and major advances have been made. My opinion on the matter is as followed: first retire the word AIDS it is a dirty word and causes stigma. From now on advanced HIV should be used. Next undectable is everyone under 200 regardless of what lab you use. There is no evidence that I can find that says your healthier below 20 viral load then at 199.so we need to stop… read more

April 20 (edited)
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A myHIVteam Member

Yes my thought is stop putting so much emphasis on your numbers and live your life😁

April 20
A myHIVteam Member

My partner, Mike, is wonderful when it comes to gratitude. He has psoriatic arthritis, with joint replacements on the Right at shoulder, hip, & knee. He shattered his femur on the left, and the reconstruction produced a compensatory injury in his left ankle for which he wears a brace. In addition, he has had to endure multiple skin cancer surgeries including melanomas. Yet, the guy has a wonderfully positive take on it all. He does a better job with silver linings than I do, and I am no stranger to gratitude. This is the real power of the human mind! You have control over what you choose to believe.❤️

April 25 (edited)
A myHIVteam Member

Excellent question and I agree with what you stated regarding sub-200 viral load CONSISTENTLY AND ACROSS the board being considered undetectable. And this matters a great deal. I’m undetectable and adhere CLOSELY to my ART regimen. All was good until my orthopedic surgeon decides the day before my scheduled surgery that my viral load of 70 was too high and “a risk for his team I perform my hip replacement.” I had already cleared every pre surgery test required lab work ECG etc:.. He insisted I receive another clearance from my ID doctor and I’m having lab work EVERY WEEK UNTIL RESCHEDULED SURGERY May 17. I desperately need the surgery so I’m doing as requested but this isn’t fair and somehow makes the HIB patient a villain when insisting on elective surgery. And to be frank it smacks of low key prejudice and denial of service under the guise of protecting medical care staff.

April 20
A myHIVteam Member

On the other hand... 🤠
Research into HIV has been incredibly dynamic, with new and improved medications arriving faster than in any other health condition.

We went from multiple medications to single, many new ways to attack HIV replication, less frequent dosing, long acting injections, PrEP & PEP (Dovato just joined that club) and they have applied monoclonal antibody drugs to fight multi resistant infections...

No other disease has as many options in the arsenal with which to fight it. And there is no sign that things are slowing. Some of the most cutting edge research (CRISPR) is being applied to ferret out latent viral DNA from infected CD4 cells to one day rid the body of viral reservoirs.

Although we may be tired of the stigmatized terminology of HIV/ AIDS, we can rest assured that the medical "ball" won't be dropped again as in the early days of the epidemic.👊👊🏻👊🏽👊🏿❤️🤠👍

April 20
A myHIVteam Member

@A myHIVteam Member. In a way, we all face the same dilemma. Medical Science can give us longevity with various medications. You could eventually choose dialysis and a kidney transplant. Living longer is still no guarantee of fulfillment. That is a tougher nut to crack, especially when illness has taken all the joy from life.❤️

April 25 (edited)

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