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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Why Do They Send You To The Wrong Doctors And Some States ?

A myHIVteam Member asked a question 💭
New York, NY

Move from one state were I had an immunology doctor and Internalist now I have a primary care doctor that doesn't know much and keeps me going to a who bunch of specialist?

May 13, 2023
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A myHIVteam Member

Thank you i finally did get an appointment which seemed like it was not going happen but i did get one for December which is fine with me, of course i have to do more blood work before appointment but it will pay off.o appreciate what you said i hope you are well and having a good day...

November 11, 2023
A myHIVteam Member

@A myHIVteam Member if you're not hearing from the nurses, that is when you contact your medical case manager. Your medical case manager can make appointments for you.
Also, don't wait for them to call you. Right after you see the doctor, make your next appointment right there an then.

December 31, 2023 (edited)
A myHIVteam Member

@A myHIVteam Member
Dude, you need to take the bull by the horn and not wait for them to contact you.
What you should do is call them, every day if you have to, irritate the hell out of the HIV specialist's office staff and don't relent. You have a right to comprehensive care and follow up. The stigma surrounding HIV compels people to dismiss us and not take our position seriously enough. Fight for your rights and never wait for them to respond. The fight is not over for our community. Never ever settle for less. You Rock! Because you are going to make this happen and it come out in your favor, and they will respond immediately and take care of you because you are important enough. Be the squeaky wheel that gets taken care of. Aloha!

November 9, 2023
A myHIVteam Member

I wish they would...they would send me right back...I had moved to Pa & my Dr. was in Jersey & she is the BEST!!! matter a fact (if anyone moves to North Jersey & needs a Dr. I HIGHLY RECCOMMEND MY FAVORITE DOC, HER NAME IS DR. CHEW ( I MISS HER) ;'9 When I use to visit her I would have her cracking up laughing & she would always give me a hug when I left my appt.

January 5
A myHIVteam Member

I have gone through the same i have a primary care who knows nothing about HIV, so when i need to know anything or if something is wrong i have to make an appointment with my HIV specialist i have known him for years but its a pain to have to wait for a call from his nursing staff to make an appointment. I have to change one of my meds before January in order to have a surgery done and i still have not heard from anyone. It can be very annoying.

November 9, 2023

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