Connect with others who understand.

Sign up Log in
Resources
About myHIVteam
Powered By
Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

When You Were First Diagnosed How Long Did You Give Yourself To Live Or Did You Plan To Go Long?

A myHIVteam Member asked a question 💭
Grove City, OH

I'm wondering about the difference in how newly diagnosed people compare to long timers when we first find out.

December 20, 2022
View reactions
A myHIVteam Member

I was diagnosed in 1990 in Texas and they gave me my results in a black folder, put me on AZT and told me to get my affairs in order. They told me I would not last 10 years. That was over 30 years ago - and that is pretty much the attitude I had at that time. I was like, "oh no Mischa, it is going to be me, Cher, and the roaches when this game is done". That said, many many years of horrible side effects from research trial medications later I am alive and well and thriving. I turned to activism and advocacy and was very involved in many of the early movements that delivered HIV research and care to the world and I also founded a non-profit organization that did HIV prevention, education, and curriculum development internationally. I think that attitude of "I only have ten years I better make the most of it" has also been a huge benefit to my professional career in real estate and travel. I really did not perceive that I had the time to waste that others had when I was in my 20's.

December 21, 2022
A myHIVteam Member

I knew I was going to live longer due to the mindset I put my self in, I saw my sister die with Aids 1994, I wanted to live on so I did, 💔

October 8, 2023
A myHIVteam Member

I have 29yrs and more coming God got me😇

October 6, 2023 (edited)
A myHIVteam Member

At the time I didn't think I would be here today but I am so far

December 28, 2022
A myHIVteam Member

Well my friend I'm going to tell you the truth and after I got diagnosed about 4 years ago I thought my time was over I was ready to plan my funeral I just didn't really focus on anything but that because I knew my time would be quick given that I didn't know much about medicine I didn't realize that we had gotten this far I had already suffered a loss by losing some of the closest friends of mines to this thing but I found a new life with new friends through fahass and they pretty much saved my life I was able to get some things done with them after getting paid out for my job I was able to get my insurance my benefits and they paid my rent for like almost 2 years so I can say I'm blessed besides all the craziness that went with me losing both of my sisters and my dad I'm blessed I just think that people like us we go through so much that's why I try to keep moving even if I'm feeling bad I try to keep going and my group keeps me going Jason knight sometimes he calls me to do things and I don't want to go or be a part of it but I go because I need to keep busy and also we need the funding to keep stuff going after I get there I'm fine I feel a lot better when I did the movie night the other day it was a good time I was able to get some pictures in and of course I do my little video thing and get them out and I feel a lot better I feel good when I get on this site and I see people on here and they're happy and that is what keeps me going besides all the craziness and I know I give my mom hell and sometimes I'm not in control but I am trying to get the help that I need and I do try to ground myself but I'm not going to babble long because I could go on and on I do hope everyone has a wonderful holiday be blessed always love Trey

December 22, 2022

Related content

View All

When You First Got Diagnosed With HIV, How Long Was It Before You Had Sex Again With Another Person?

A myHIVteam Member asked a question 💭
Edmore, MI

Life Letter

A myHIVteam Member asked a question 💭
Edmore, MI

Was You Given Isoniazid As Your First Line Of Treatment?

A myHIVteam Member asked a question 💭
Edmore, MI
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in