Connect with others who understand.

Sign up Log in
Resources
About myHIVteam
Powered By
Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Are Effects From Being Off Medications?

A myHIVteam Member asked a question 💭
West Palm Beach, FL

I'm working on getting back on my meds. I have a Dr. appointment next week. I was recently put on Tivicay and Descovy. But then my prescription ran out. I needed Labs done. Then my drivers license was stolen. I had to wait for another one. Then eventually when It came in I had to schedule another lab appointment. Needless to say, I've been OFF the medications for over a month, possibly Month and 1/2. What does this do to the inside of my body and how does it affect how I feel???

May 3, 2018
View reactions
A myHIVteam Member

When you initially go off meds you might feel better and have more energy but meanwhile the virus has the ability to multiply. This will lead to lower tcell counts and higher viral load counts. When you have a viral load you can infect another person. If the HIV drug regimen is taken sporadically, your virus can develop a resistance so eventually you will run out of drug options and so will the people you give it to. I have had this disease a long time also and I have seen people mess around with their HIV medicine taking a pill here and there and taking drug holidays. My advice is don't do it, its not pretty and not worth the risk. I also totally understand how difficult it is in this country/state to get or keep insurance or to even get the HIV meds in the first place. Don't let the system sweep you under the rug because it will if you let it. Fight and do what you have to so you can stay healthy and alive.

November 16, 2023
A myHIVteam Member

The danger of not being on treatment is that the HIV in the blood can cross the blood brain barrier and cause serious brain problems which can be very hard to resolve. I found this out in 1996 when HIV combinations had not yet been invented. In my case the HIV pretty much paralysed me having entered the Brain and replicating there. It took 2 years before a suitable combination became available to finally resolve the HIV in my Brain.. Therefore its very important to stay on treatment to prevent HIV from getting a chance to enter the Brain. Im reallly shocked that in modern day America people still have problems accessing treatment. Here in the UK all medical treatment is free.

November 14, 2023
A myHIVteam Member

I stopped taking mine due to having breast cancer and depression, hoping I would ___. My viral load increased tremendously but I'm back on medication and undetectable. Never stop taking your meds no matter what.

January 17 (edited)
A myHIVteam Member

I went off for two months for similar reasons and I went from undetectable to over a 50000 viral count and a much lower cd4. It recovered quickly

May 20, 2018
A myHIVteam Member

Wow, I posted this 6 years ago Lol. Happy to announce I'm undetectable in 2024!

January 17

Related content

View All

I Started Taking Biktarvy A Year Ago. Ever Since I Started On Biktarvy, I've Been Gaining Weight. Weight Gain Was Never A Problem Before.

A myHIVteam Member asked a question 💭
Youngstown, OH

Complementary And Alternative Medicine (CAM)

A myHIVteam Member asked a question 💭
Columbia, SC

What Medication Do You Take?

A myHIVteam Member asked a question 💭
League City, TX
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in