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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do Any Of You Manage To Stay On Medication An Take Them On Time?

A myHIVteam Member asked a question 💭
Oklahoma City, OK

I do good taking antivirals until I get overwhelmed with life (school, work, exc). How do any of you manage to stay on medication an take them on time?

December 20, 2016
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A myHIVteam Member

I have several things I do.
1) I have my pill times set to android alarm on my phone and tablet.
2) I have everyday reminders sent to me on google calendar
3) I keep 4 days worth of just my HIV meds in my glove compartment in the car, just in case I forget to grab them on my way out the door. just remember to restock your car. you can remind yourself with of course android alarm
4) I have a weeks worth of meds at a friends house that I am at a lot.
5) I have a weeks worth of meds locked up at work (when I was working)
6) when the alarm goes off to take meds, I do not shut it off, until I take my meds, instead I hit the snooze button (I have it snoozing for 15 minutes).
7) when I get my first prescription, (you can do it even if you do it if it is not your 1st prescription), I renew my meds at the end of the 3rd week. when I get them, I still have a week's worth of meds left. I then set my google calendar up to remind me every 28 days to remind me to get a refill. If you renew every 28 days, and get 30 days of pills, in a year, you will have an extra 24 days of meds stocked up, in the case of emergency of insurance problems. Right now, I have 2 months reserve on hand. When the doctor changes prescriptions, I finish up what I have first, but still order the new prescriptions, so I can keep my reserves on hand.

January 3, 2017
A myHIVteam Member

I am currently using HERO, a dispenser with an app. I load everything into it to include OTC medicines and vitamins. There are 10 slots inside the device. The only drawback is there is a monthly subscription you must pay for even after the initial purchase of the device.
It has kept me 100% compliant with taking all of my meds without fail. I no longer worry if I missed a dose and it will also remind me of the levels remaining. The app also send a reminder text when I am away from the unit.
It is child safe, since I have 3 grand children in my home.
It is well worth it, to me, having this convenient way of managing my medication.
It is not a replacement for Timmy (rip) who was my partner and reminder.

Now, I have to decide what to do with my 31 day carousel dispenser that is well used and well cared for. Any takers? I will send it to you if you want it.
Aloha! John

February 5, 2021
A myHIVteam Member

Cause I know if I don't take my meds on time every day . I'm gonna get sick and then I'm going to get sick . And I'm going to take my meds cause I want to see all of you get old . It's the good life for me been undetected for 15 years .

December 25, 2018
A myHIVteam Member

You can try phone alarms, or use an app that offers a free reminder/email service to your phone. The reminder can say anything you like, as long as you know it relates to meds.

January 3, 2017
A myHIVteam Member

As a long term survivor I refused megadose AZT when that was only thing available in 80s and 90s until 1997 when protease inhibitors became available thanks to activism. I refused megadose AZT on advice of my only sister who had aids diagnosis in 1985 in NYC . She told me not to go on it because they were all dying on it. I listened to her. Waited until 1997 which by that time I had less than 10 t cells.
The protease inhibitors were horrible with very nasty side effects but I can say I way surpassed my " 6 months to live" and since I started meds I have been compliant and undetectable ever since. I take my one pill a day right before I go to bed. Everyone I knew that refused to be compliant including my sister and husband are dead.

June 30, 2023

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