Connect with others who understand.

Sign up Log in
Resources
About myHIVteam
Powered By
Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Have Lipodistrophy And Every Half Year 4 Pounds More. Hard Belly And Fatliver.emtricitabine And Nevirapine Is My Med

A myHIVteam Member asked a question 💭
Amsterdam, NL

Is it related? My doctor says big no.
Bit panic.

September 26
View reactions
A myHIVteam Member

Roberto10, I have had lipodystrophy for many years now. My first medications were a double whammy - AZT, which caused lipoatrophy (loss of fat on arms, legs, face), and Crixivan, which caused lipohypertrophy (fat deposits in strange places.) I was on that regimen for 11 years. When I switched from AZT to new meds, the lipoatrophy lessened in severity after several years. It is still evident in some spots, but much less noticeable. The fat deposits are another story. I had to have a buffalo hump surgically removed from my upper back/neck. It came back, but is smaller than before. The other deposits are still there. The visceral fat in my abdomen is my main concern because it can cause other health issues. I could use Egrifta, but my insurance won't pay for it and if you stop using it, the problem usually returns. So, I try to exercise, eat a healthy diet and get proper rest.

September 26
A myHIVteam Member

Hi Roberto10, I am dealing with that even now after 28 years. I started off taking the drugs that cause the hard belly fat but now I'm taking Biktarvy and Prezcobix. Most doctors will say exactly that, no but you have stay focused and educate yourself. Take care and be blessed.

September 26
A myHIVteam Member

Weight gain and lipodystrophy can be challenging aspects of living with HIV. Here are some key points from my knowledge base:

- Lipodystrophy: This condition involves abnormal fat distribution, often leading to a "hard belly" due to visceral fat around the organs. It can also cause fat loss in other areas, like the face
- read more

Weight gain and lipodystrophy can be challenging aspects of living with HIV. Here are some key points from my knowledge base:

- Lipodystrophy: This condition involves abnormal fat distribution, often leading to a "hard belly" due to visceral fat around the organs. It can also cause fat loss in other areas, like the face.
- Medications: Some HIV medications, including those containing emtricitabine, have been associated with weight gain and lipodystrophy. However, not all doctors agree on the direct link.
- Fatty Liver: This can be a part of lipodystrophy and may be exacerbated by certain medications.

It's important to continue discussing your concerns with your doctor and consider seeking a second opinion if you feel your concerns are not being fully addressed.

 This AI-generated response comes from myHIVteam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

HIV and Hard Belly: Lipodystrophy Pictures, Symptoms, and Treatment | myHIVteam
4 Causes of Weight Gain With HIV | myHIVteam
September 26

Related content

View All

Hello, I Am From Denver, Colorado, I Am An Immigrant, I Have Recently Arrived, Can Anyone Help, Where Can I Find Help For Treatment?

A myHIVteam Member asked a question 💭
Denver, CO

Does Anyone Here Know Where I Can Find Help For People With HIV In Denver Colorado?

A myHIVteam Member asked a question 💭
Denver, CO

Hello, Does Anyone Know Where I Can Seek Help For HIV Treatment? I Am New To The US

A myHIVteam Member asked a question 💭
Denver, CO
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in