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Real members of myHIVteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Any Hiv Meds Destoryed Your Bones?

A myHIVteam Member asked a question 💭
Chicago, IL

How many people suffer from bones loss, due to long term use of Our Hiv/ Aids Meds?Im have ostopenia by the time im 60 they say i might be crippled, Have good Rhemotology Docter from Kuwait, working with me on lots of Calcium,vitamin d,folic acid, and bones injections, and diet change, trying to reverse the damage and add growth to my bones...My new fight in life is fighting to saved my bones,with lots of working it out...Never give up...

April 14, 2019 (edited)
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A myHIVteam Member

I used to be on Complera,It destroyed my bones in my Neck,And my hips,Had my neck rebuilt with Cadvier bones,Fusions ,cushion,and Screws,Funny thing pieces of my neck looks like pieces that would go in. Remote Control,But anyhow I'm so much better as far as my neck is,No more pain,But my hips ache,I did win a Lawsuit against Gilead for bone damage,Final ,But I still here 24 years positive,I learned being Hiv positive,To do your research on your medication before you accept what the doctor choose for you,You have several options,of medication... Long term effects, Could be worse than Living with HIV...

May 29
A myHIVteam Member

Your post about this issue is everything. I’m 6’ was very active from childhood into adulthood. Working out, adult basketball leagues, softball etc… Complera and Genvoya caused so much bone loss that was discovered a couple years later. By that time I had developed osteoporosis, vitamin d deficiency and worsening of preexisting anemia. This is a problem because treating the vitamin d deficiency and attempting to rebuild brittle bones inhibits my body’s ability to increase red blood cell production and keeping my hemoglobin at a level high enough so that I don’t damage my kidneys. I had my right hip replacement surgery last Friday and orthopedic surgeon advised me to have both knees replavedn.6 mos-1 year. Osteoarthritis is so bad that it takes me a good hour everyday before I’m able to move without pain and stiffness. I’m 51 but have the bones of a 70!yr old female based on bone scans and X-rays.

May 23
A myHIVteam Member

I hear you😃 I'm in the same place but understand your body ....things like bending your knees, running ...be extra careful to know how your body responds to certain physical movements . we have to understand that as we mature certain things aren't the way they used to be 🌈🤗😊❤️

May 29, 2019
A myHIVteam Member

Yes, I've got osteonecrosis from AZT, right hip replacement with left side still to go.

May 26, 2019
A myHIVteam Member

Everybody goes to a lot of side effects from the bed and they affect you different me I got the hump I've also had over 15 opportunist infections I lost blood when I became anemic when AZT came up but I never gave up I called places I studied knowledge is power I'm still here that's been 36 years I believe in you happy Easter

April 20, 2019

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