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Are You A Long-term Survivor?
Being a long-term Survivor has its many setbacks. One of them being loneliness and feeling left out. With the new generation of Atriplas, many of us long-term survivors experience feeling forgotten.
Yes I am There’s the feeling of loneliness and the feeling of survivors guilt
Will You Be Doing Anything To Honor/celebrate HIV Long-Term Survivors Awareness Day Today June 5?
First time I've heard of this.
Can All Of The Long Term Survivors Relate? Forty Years A Survivor
Read more at this link:
https://www.aidsmap.com/news/jun-2021/forty-yea...
I have not read the article as I don't qualify as I am from South Africa. I am nearing the end of my 31 year. Unfortunately we don't have benefits like the 1st world countries
We have to struggle… read more
What Was Your First Thought?
Whether you are recently diagnosed or a long-term Survivor, we always remember the first time we hear the words, "you are HIV positive"
Do you remember?
My 2nd. thought was I’m going to die, how long do I have left?
Long Term Survivor Check In:
Just wanted to get a consensus how long term survivors are doing in general. Health, getting enough support, relations with family and friends, encountering any stigmas. I've lived with HIV half my life, diagnosed with HIV in 1987. I am having issues with all of the above. It is hard finding a place to fit in.
Anyone else experiencing this?
A long-term survivor shared their experience in the knowledge base. Diagnosed in 1985, they were initially told they had only two years to live. Over 35 years later, they are still thriving, thanks to… read more
Coordinating Long Term Survivors:
I was diagnosed in 1987 living half my life with HIV. I am interested in connecting with people who are also Long Term Survivors. I have searched the site and have found quite a few. We are so few and far between it has been hard to find others who have been through the journey we have experienced. Having lost so many friends in the 80 's and 90's plus being diagnosed myself has made me feel survivors guilt and PTSD. Looking for others who have experienced some of the same and like to set… read more
1985 & diagnosed "full blown" 1990 although they don't use that term anymore! Thank goodness! I read earlier on this site a comment about "long term" & the difficulties we face. We do have different… read more
The Worst Things For Me Living As A Long Term Survivor Of 32 Years:
With HIV now looked at as a manageable disease, and the introduction of PREP, there are a handful of us who are the final living proof carrying the history and legacy of the original AIDS generation. The majority of Long Term Survivor's they say are in their 50's or 60's, I am in my sixties so that fits my category. But I suffer AIDS Survivors Syndrome in a major way which has inevitably isolated me into feeling completely misunderstood by my friends, and family. It is fair to say most of my… read more
Living as a long-term survivor of HIV for 32 years can come with various challenges. Based on the knowledge base, here are some of the difficulties that might be experienced:
- Isolation and… read more
Does Anyone Have Any Happy HIV Stories To Share??? Does Everything Have To Be Gloom And Doom?
My story: The lbgtqiaxyz senior program I recently joined has a subsection group for poz 50+. It really is a joy to be at a center that has such special programming. I've been to a play and party event. Met some wonderful people as well. Looking forward to an enjoyable future.
I’m still here thirty something years after I was told my time was limited. Additionally, perhaps my husband and I would not be together otherwise. When we met in ‘99, my husband, who is negative, had… read more
I Wonder If Any Of You Suffer From Survivor's Guilt. I Do Occasionally And Have Wondered If Anyone Else Does.
Oh hunny can we talk
After burying 7 of my friends in 2001 I began to wonder why the hell I survived
As I learned to accept myself and by listening to my late husbands words of " only you can make… read more
What Would You Tell People About Having Long-term HIV Infection?
For those long-termers , what would you tell your fellow HIV team member, who is recently infected or only a couple years into it?
That it's no longer a death sentence, so life your life and have fun!
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